Your doorway into the world of Patient Powered Research

Patient-Powered Research is a new concept. It is patients and their health data and insights driving the medical research process. This website is a hub for people (patients, researchers, and other health professionals) who want to perform patient-powered research. Use this website to connect with them around ideas for research.

Specify the condition(s) you care about and you'll find others who care. Propose an idea for research you want done, and have people gather around and build that idea up until it blossoms into an full-blown research study.

We Are...

Watch the Video Tour... is open-source, open-data, non-commercial, creative-commons licensed public good. This website is not a business. User-generated content on this site is licensed under a Creative Commons so the most people do the most good with it. Want to contribute? Email Sean via